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Living with a Neurological Condition - Study

posted by SK Brain Injury    |   September 27, 2011 10:39

Dear Friends of the Brain Injury Community, 

Please see the attached letter and poster from the Living with a Neurological Condition (LINC) Study Team – Dr. Tanya Packer and Dr. Joan Versnel from Dalhousie University.

As you know, the National Population Health Study of Neurological Conditions (NPHSNC) is well underway, and some teams are looking for the NHCC membership to help with recruitment of their membership to participate in various surveys.

The Dalhousie team is looking for your help to assist in recruitment for their LINC Study. The study will focus on the impact of neurological conditions on individuals, as well as families.  This is an excellent opportunity to have your neurological condition (Brain Injury) represented in the NPHSNC. 

We invite you to forward this information to the members of your community living with a neurological condition (Brain Injury) and their families. You can simply:

  • “Copy and paste” the invitation letter into the body of an email and send the English and French posters out via email
  • Include the link in upcoming newsletters
  • Post the posters to your website 

We really want to help build a “brain” community, and invite Canadians to participate in this first ever national study of neurological conditions. Your participation, support and assistance is paramount in this effort.

Should you have any additional questions, or require further clarification, please do not hesitate to contact me.

 

Regards,

 Celina

Recruitment Flyer-French.pdf (386.08 kb)

Recruitment Flyer.pdf (342.79 kb)

Letter of Invitation.pdf (133.40 kb)

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Survey

How Aboriginal Women and their Families are impacted by Brain Injury - Survey

posted by SK Brain Injury    |   September 27, 2011 10:36

Dear Friends of the Brain Injury Community,

As a member of the NHCC Brain (Brain Injury) Community, you are receiving this invitation to participate in a brief survey for the Native Women’s Association of Canada’s Understanding from Within project. “Understanding from Within"explores how Aboriginal women, their families and communitiesare impacted by neurological conditions (brain injury).

As part of our work, we are gathering information about existing neurological health services for Aboriginal peoples. This short survey is aimed at identifying services or programs specifically for Aboriginal service users – including First Nations, Métis and Inuit peoples who are experiencing (or a caregiver of someone experiencing) any of the following conditions:

  • Dementia - Including Wernicke Korsakoff syndrome, HIV dementia, and dementia subsequent to stroke or brain injury
  • Alzheimer’s disease
  • Cerebral Palsy
  • ALS (Lou Gehrig’s disease)
  • Multiple Sclerosis
  • Huntington’s Disease
  • Parkinson’s Disease
  • Spina Bifida
  • Tourette Syndrome
  • Brain tumours
  • Neurotrauma (acquired brain injury (ABI),spinal cord injuries)
  • Epilepsy

This project is part of the National Population Health Study of Neurological Conditions, a collaboration between the Neurological Health Charities of Canada (Brain Injury Association of Canada) and the Public Health Agency of Canada. The study is being conducted by the Native Women’s Association of Canada in association with Dr. Carrie Bourassa, First Nations University of Canada.

The survey will take approximately 15-30 minutes to complete. You may choose to complete the survey online at https://www.surveymonkey.com/s/D5SXMVH. If you prefer to receive a paper copy of the survey or to complete the survey by telephone, we are happy to work with you to make such arrangements.  

If you are unable to access this link, or should you have any questions concerning the Understanding from Within study, please contact the Research Coordinator, Melissa Blind at the Native Women’s Association of Canada by telephone (613-565-3026) or email (mblind@nwac.ca).

Thank you for your participation.

Sincerely,

Melissa

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Survey